We have a big praise report! AJ is off the round the clock IV antibiotics! Woo-hoo! His white blood cells are continuing to rise and are at the point that these heavier doses of antibiotics are not necessary. It was so nice to fall into bed last night at 11pm knowing the alarm was not set for 12:45am, 1:30am, and 7:30am! The other great news is that, at least for yesterday, Andrew's other counts were hovering just above the crisis point and he avoided any transfusions. I hate to even mention this because that might not be the case today. But for yesterday it was a pleasant surprise to have no antibiotics and no transfusions.
Now, we are not out of the woods yet. Despite a rising white cell count, Andrew's immune system is still weak. We had to cancel two sets of visitors for today, fearing exposure to sickness. Going back on antibiotics would be devastating! And as Andrew receives more drugs to manage the counts, he gets more side effects, which necessitate more drugs. The cycle seems endlessly confusing.
But overall we are thrilled that we are seeing progress. It's still a haul. We're at day #17 and the earliest we can even hope to commute from Virginia is day #35. (Andrew will be monitored frequently until at least day #60.)
Thanks to everyone for your prayers. We've even been entertained as we had no less than four visitors yesterday - including Andrew's brother Gordon - who all brought great stories and laughs.
That is a big praise report! So glad that you have had visitors, especially Gordon. What wonderful news on the birth of your new niece, Eliza - I love the name Eliza Jones. What a blessing.
ReplyDeleteWe are back in North Carolina - it is nice to back here. We had a nice ten days in Needham a couple weeks ago.
I have an album of photos from the summer, which you might enjoy looking at. I haven't completed editing it and there are a number of duplicates - but, you can just breeze through them. I'll sned you a link in an email tomorrow.
Wonderful update! Congratulations on the release from antibiotics. It seems in the process every step must feel momentous. Warm regards, Rhonda
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